Science in Paris, 2022

September 1, 2022

CLARITY members attended the Science in Paris meeting from August 29 to September 1, 2022, where they presented 7 abstracts. Science in Paris is an international symposium on Marfan syndrome, Loeys-Dietz syndrome, vascular Ehlers-Danlos syndrome and related conditions in Paris, France. The abstracts presented were:

  • Cardiovascular Outcomes and Survival in Patients with Early-Onset Marfan Syndrome.

Taylor Beecroft, MS, CGC; Alana Cecchi, MS, CGC; Dianna Milewicz, MD, PhD; Glen Iannucci, MD; Gregory Perens, MD; Alan Braverman, MD; Julie De Backer, MD, PhD; Ronald V. Lacro, MD; Shaine A. Morris, MD, MPH, for the Montalcino Aortic Consortium (MAC) and the Collaborative for Longitudinal Aortic Research in the Young (CLARITY).

  • Gestational Age as a Proxy for Arterial Fragility in Vascular Ehlers-Danlos Syndrome

Sara B Stephens, MPH; Taylor Beecroft, MS, CGC; Justin Weigand, MD; Shaine A. Morris, MD, MPH.

  • Individualized Aortic Root Prediction in Pediatric Marfan Syndrome

Julia Lovin, MD; Sara B. Stephens, MPH; Justin D. Weigand, MD; Shaine A. Morris, MD, MPH.

  • Pilot Study of the Effects of Moderate Intensity Exercise on Children and Young Adults with Marfan Syndrome

Jennifer Bogardus, PT, PhD; Jolie Britt, MD; Shantyka Walton, MPH; Tam Dan N. Pham, MD; Justin Weigand, MD; Shaine A. Morris, MD, MPH.

In collaboration with Pregnancy and Reproductive Outcomes in Women with Genetic-Predisposition for Aortic Dissection (PROWGAD), the following abstracts were presented:

  • Aortic dissection and cardiovascular outcomes in women with Marfan, Loeys-Diez, Vascular Ehlers Danlos, Bicuspid Aortic Valve and HTAD: Results from PROWGAD (Pregnancy and Reproductive Outcomes in Women with Genetic-Predisposition for Aortic Dissection)

Melissa Russo, MD1, E Cleary, MD; CM Albright, MD, MS; S Shalhub, MD, MPH; K French, MD; A Braverman, MD; A Yetman, MD; S Morris, MD, MPH; and PROWGAD Investigators Group.

  • Obstetric and Neonatal Outcomes in women with Marfan, Loeys-Dietz, Vascular Ehlers Danlos syndrome and Bicuspid Aortic Valve: Results from PROWGAD (Pregnancy and Reproductive Outcomes in Women with Genetic-Predisposition for Aortic Dissection)

Melissa Russo, MD: CM Albright, MD, MS; M Toscano, MD; HB Al-Kouatly, MD; K Florio, MD, MPH; E Cleary, MD; and PROWGAD Investigators Group.

  • Breastfeeding Practices and Vascular Complications Among Pregnant Women with VEDS

Sara Stephens, MPH; Shaine A. Morris, MD, MPH; Melissa Russo, MD.

Stay tuned for the published articles!

To view the final abstract booklet, click here: https://marfan.org/wp-content/uploads/2021/07/International-Symposium-Booklet-2022_web.pdf

IMAGE SOURCE: https://marfan.org/scienceinparis/