2022 American Academy of Pediatrics National Conference

2022 American Academy of Pediatrics National Conference CLARITY presented the following projects at the AAP National Conference and Exhibition 2022 in Anaheim, California: Gestational age as a proxy for arterial fragility in Vascular Ehlers-Danlos syndromeSara B Stephens, MPH; Taylor Beecroft, MS, CGC; Justin Weigand, MD; Shaine A. Morris, MD, MPH. Case report: Longest reported survival…

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Vascular Ehlers-Danlos Syndrome Article Published

October 1, 2022 CLARITY team members have published the Evaluating perinatal and neonatal outcomes among children with vascular Ehlers-Danlos syndrome paper in the Genetics in Medicine journal. This research involved 41 children with pathogenic or likely pathogenic COL3A1 variants.  The investigators found that preterm birth is more common in children with VEDS than in the…

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Science in Paris, 2022

CLARITY members attended the Science in Paris meeting from August 29 to September 1, 2022, where they presented 7 abstracts. Science in Paris is an international symposium on Marfan syndrome, Loeys-Dietz syndrome, vascular Ehlers-Danlos syndrome and related conditions in Paris, France.

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