Risk Calculators
Aortic Root Z-score Calculator for Children
- Parameterz: http://www.parameterz.com/sites/aortic-root
- Pediatric Heart Network Z-Score: http://www.parameterz.com/refs/lopez-circimaging-2017
- Boston Z-Score Calculator: https://marfan.org/dx/zscore-children/
Aortic Root Z-score Calculator for Adults
- Parameterz: http://www.parameterz.com/sites/aortic-root
- Boston Z-Score Calculator: https://marfan.org/dx/z-score-adults/
Aortic Size Index
- Maximum aortic size divided by surface area (https://www.annalsthoracicsurgery.org/article/S0003-4975(05)01031-3/fulltext#secd17620610e1700)
Clinical Scoring System for Early Onset (Neonatal) Marfan syndrome
Aortic Dimensions in Turner syndrome
- Quezada et al.: https://onlinelibrary.wiley.com/doi/abs/10.1002/ajmg.a.37208
- Parameterz: http://www.parameterz.com/refs/quezada-ajmg-2015
Cardiovascular Outcomes in Aortopathy: GenTAC Registry of Genetically Triggered Aortic Aneurysms and Related Conditions
- Holmes et al.: https://www.jacc.org/doi/full/10.1016/j.jacc.2022.03.367
Aortic Cross-Sectional Area/Height Ratio
Comparative Risks of Initial Aortic Events Associated With Genetic Thoracic Aortic Disease
- Regalado et al.: https://www.jacc.org/doi/10.1016/j.jacc.2022.05.054
Vertebral Tortuosity Index
Disclaimer:
Information contained at cIarityregistry.com and its links (“Information”) are made available subject to the following conditions:
- Changes to Information may occur, since the last update, which affect the accuracy and availability of the Information presented.
- As a visitor to the website, you are advised to independently verify Information obtained on the internet when making use of or making any decision based on the obtained Information.
- You must confirm all calculations before use. The suggested results are not a substitute for clinical judgment. Neither cIarityregistry.com, the Collaborative for Longitudinal Research In The Young (CLARITY), the Loeys-Dietz Syndrome Foundation Canada, nor any other party (“Party” or “Parties”) involved in the preparation or publication of this website or the Information shall be liable for any damages, including personal injury, death, property damage, or special, consequential, exemplary, indirect, or punitive damages arising out of a your use of this website or resulting in whole or part from any use of or reliance upon the results or values generated by the calculators or other information or materials included on this website.
- In consideration of your use of this website, cIarityregistry.com, you covenant not to sue, and further indemnify, waive, release and discharge, cIarityregistry.com, CLARITY, and the Loeys- Dietz Syndrome Foundation Canada, and any person and/or organization associated with the website from any and all liability, including claims, litigation, costs of defense, including attorneys’ fees, for death, personal injury, or property damage of any kind or nature, whatsoever arising out of, or in the course of, your use of this website or resulting in whole or part from any use of or reliance upon the results or values generated by the calculators or other information or materials included on this website.
- Accessibility of services, documents, programs, information, and any other material through this Website does not imply suitability or endorsement for any purpose whatsoever by any Parties.
- Specific medical advice is not provided, and cIarityregistry.com urges patients to consult with a qualified physician for diagnosis and for answers to their personal questions.
- You agree to abide by all applicable copyright and intellectual property laws.
- cIarityregistry.com cannot and does not guarantee users protection against possible infections and viruses transmitted when downloading files from this site and thus disclaims all liability associated with the contraction of viruses and infections.
- If you do not accept the terms and conditions in this Disclaimer, you do not have permission to use this website.
