CLARITY presented the following projects at the AAP National Conference and Exhibition 2022 in Anaheim, California:

1. Gestational age as a proxy for arterial fragility in Vascular Ehlers-Danlos syndrome
   Sara B Stephens, MPH; Taylor Beecroft, MS, CGC; Justin Weigand, MD; Shaine A. Morris, MD, MPH.
   
   
2. Case report: Longest reported survival for autosomal recessive Cutis Laxa Type 1B in 31-year-old patient with severe aortopathy and extensive arterial tortuosity
   Taylor Beecroft, MS, CGC; Benjamin Jacob, PA; Emily Soludczyk, MS, CGC; Shaine A. Morris, MD, MPH.
   
   
3. Cardiovascular outcomes and survival in patients with Early-Onset Marfan syndrome
   Taylor Beecroft, MS, CGC; Alana Cecchi, MS, CGC; Dianna Milewicz, MD, PhD; Glen Iannucci, Glen, MD; Gregory Perens, MD; Alan Braverman, MD; Julie De Backer, MD, PhD; Ronal V. Lacro, MD; Shaine A. Morris, MD, MPH; for the Montalcino Aortic Consortium (MAC) and the Collaborative for Longitudinal Aortic Research in the Young (CLARITY).
   
   
4. Individualized aortic root prediction in pediatric Marfan syndrome
   Julia J. Lovin, MD; Sara B. Stephens, MPH; Justin D. Weigand, MD; Shaine A. Morris, MD MPH.
   
   
5. Arterial Tortuosity syndrome: A longitudinal assessment of cardiovascular features
   Bita Salamat, DO; Andrea Taylor, BS; Sara B. Stephens, MPH; Taylor Beecroft, MS, CGC; Justin Weigand, MD; Benjamin Jacob, PA-C; Shaine A. Morris, MD, MPH.
   
   
6. Fatal and non-fatal aortic dissections documented in three children with ACTA2 variants
   Sara B. Stephens, MPH; Hannah Jarvis, MD; Taylor Beecroft, MS, CGC; Emily Soludczyk, MS, CGC; Dantin Roddy, MD; Dianna M. Milewicz, MD, PhD; Shaine A. Morris, MD, MPH.
   
   

In collaboration with Pregnancy and Reproductive Outcomes in Women with Genetic-Predisposition for Aortic Dissection (PROWGAD), the following abstracts were presented:

7. Aortic dissection and cardiovascular outcomes in women with Marfan, Loeys-Diez, Vascular Ehlers Danlos, Bicuspid Aortic Valve and HTAD: Results from PROWGAD (Pregnancy and Reproductive Outcomes in Women with Genetic-Predisposition for Aortic Dissection)
   Melissa Russo, MD; E Cleary, MD; CM Albright, MD; Sherene Shalhub, MD, MPH; K French, MD; Alan Braverman, MD; Anji Yetman, MD; Shaine A. Morris, MD, MPH; and PROWGAD Investigators Group.

8. Obstetric and Neonatal Outcomes in women with Marfan, Loeys-Dietz, Vascular Ehlers Danlos syndrome and Bicuspid Aortic Valve: Results from PROWGAD (Pregnancy and Reproductive Outcomes in Women with Genetic-Predisposition for Aortic Dissection)
   Melissa Russo, MD; CM Albright, MD, MS; M Toscano, MD; HB Al-Kouatly, MD; K Florio, MD, MPH; E Cleary, MD; and PROWGAD Investigators Group.

9. Breastfeeding practices and vascular complications among pregnancy women with vEDS
   Sara Stephens, MPH; Shaine A. Morris, MD, MPH; Melissa Russo, MD.

Stay tuned for the published articles!