CLARITY Members & Committees

Shaine Morris, MD MPH

Baylor College of Medicine
CLARITY Scientific Director
Steering Committee, Website Committee, Imaging Committee, Genetics Committee

Adam Dorfman, MD, FACC, FASE

University of Michigan

Alan C Braverman, MD, FACC

Washington University School of Medicine in St. Louis
Site PI

Alexandra Channing, MD

NewYork-Presbyterian Morgan Stanley Children’s Hospital
Co-Site PI, Imaging Committee

Andrea Taylor

A Twist of Fate- ATS

Anjali Chelliah, MD

Goryeb Children’s Hospital
Site PI

Anji Yetman, MD

University of Nebraska Medical Center
Site PI, Steering Committee

Ashwin Prakash, MD

Boston Children’s Hospital

Bart Ferket, MD, PhD

Icahn School of Medicine at Mount Sinai (ISMMS)
Site PI

Benjamin Cheong, MD

Texas Heart Institute at St. Luke's Episcopal Hospital

Charles Gene Minard, PhD, M.S., B.S.

Baylor College of Medicine

Denver Sallee, MD

Sibley Heart Center, Children’s Healthcare of Atlanta
Site PI

Dianna M Milewicz, MD, PhD

UT Health Houston
Co-Site PI

Elizabeth Makil, MD

Oklahoma Children's Hospital

Emilio Quezada Liuti, MD

University of California San Francisco Benioff Children’s Hospital
Site PI

Glen Iannucci, MD

Children’s Healthcare of Atlanta Cardiology / Emory University

Gregory Perens, MD

University of California, Los Angeles
Site PI

Hal Dietz, MD

Johns Hopkins Universiy

Hanoch A Patt, MD

Dell Children’s Medical Center

Jeremy Steele, MD, FACC

Yale School Of Medicine
Site PI

Jessica Bowman, MD

Abigail Wexner Research Institute at Nationwide Children’s Hospital

Jida El Hajjar, PhD

Loeys-Dietz Syndrome Foundation Canada
Website Committee

Jimmy Lu, MD

University of Michigan
Site PI

Jonathan Johnson, MD

Mayo Clinic
Steering Committee

Joseph A Camarda, MD

Ann & Robert H. Lurie Children’s Hospital of Chicago
Site PI

Josephine Grima, PhD

The Marfan Foundation
Patient Advocate

Joshua D Robinson, MD

Ann & Robert H. Lurie Children’s Hospital of Chicago

Juan Carlos Muniz, MD

Nicklaus Children's Hospital, Miami

Juan M Bowen, MD

Mayo Clinic

Justin Tretter

Cleveland Clinic
Site PI

Justin Weigand, MD

Baylor College of Medicine

Kathryn Holmes, MD, MPH

Oregon Health and Science University
Site PI, Steering Committee, Imaging Committee

Kelly Cox, MD

Ann & Robert H. Lurie Children’s Hospital of Chicago

Kenneth Zahka, MD

Cleveland Clinic

Keren Hasbani, MD

Dell Children’s Medical Center
Site PI

Kim McBride, MD, MS

Abigail Wexner Research Institute at Nationwide Children’s Hospital
Site PI, Steering Committee

Lara Bloom

The Ehlers-Danlos Society
Patient Advocate

Lindsay Parsons

Loeys-Dietz Syndrome Foundation Canada
Website Committee

Lukas Kusiak

Loeys-Dietz Syndrome Foundation Canada
Website Committee

Martina Brueckner, MD

Yale School Of Medicine
Co-Site PI

Mary J Roman, MD

NewYork-Presbyterian Hospital
Site PI

Melissa L Russo, MD

Women and Infants Hospital of Rhode Island
Site PI

Michael DiLorenzo, MD, MSCE, FASE

NewYork-Presbyterian Morgan Stanley Children’s Hospital
Co-Site PI, Imaging Committee

Michael Silberbach, MD

Oregon Health and Science University

Pierangelo Renella, MD

Children's Hospital of Orange County
Site PI, Imaging Committee

Rajesh Krishnamurthy, MD

Abigail Wexner Research Institute at Nationwide Children’s Hospital
Steering Committee, Imaging Committee

Renelle George, MD

Children’s Hospital at Montefiore
Site PI

Richard B Devereux, MD

NewYork-Presbyterian Hospital

Robert Tunks, MD

PennState Health
Site PI

Ronald Lacro, MD

Boston Children’s Hospital
Site PI, Steering Committee

Seda Tierney, MD, FAAP, FASE, FACC, FAHA

Stanford University School of Medicine
Steering Committee, Imaging Committee

Shelby Kutty, MD, PhD, M.S.

Johns Hopkins University
Site PI

Sherene Shalhub, MD, MPH

University of Washington (UW Medicine)
Site PI

Siddharth Prakash, MD, PhD

UT Health Science Center at Houston
Site PI

Stacey Drant, MD

Children’s Hospital of Philadelphia
Site PI

Talha Niaz, M.B.B.S.

Mayo Clinic
Site PI

Taylor Beecroft, MS, CGC

Texas Children's Hospital
Steering Committee, Genetics Committee

Tim Bradley, MD, MBChB, DCH, FRACP

University of Saskatchewan Canada
Site PI, Steering Committee

Tíscar Cavallé-Garrido, MD, FACC

McGill University Health Centre
Steering Committee

Jyoti Kandlikar Patel

Indiana University

Shannon Nees

The Nemours Foundation

Kim McBride

University of Calgary

Benjamin Frischhertz

Vanderbilt University

Data Coordinating Center (DCC)

The Data coordinating center will be based at Texas Children’s Hospital. This will serve as the central data repository for both clinical data and imaging data.

Committees

This committee helps with variant interpretation and is currently being supported by MAC.