Baylor College of Medicine
CLARITY Scientific Director
Steering Committee, Website Committee, Imaging Committee, Genetics Committee
University of Michigan
Washington University School of Medicine in St. Louis
Site PI
NewYork-Presbyterian Morgan Stanley Children’s Hospital
Co-Site PI, Imaging Committee
A Twist of Fate- ATS
Goryeb Children’s Hospital
Site PI
University of Nebraska Medical Center
Site PI, Steering Committee
Boston Children’s Hospital
Icahn School of Medicine at Mount Sinai (ISMMS)
Site PI
Texas Heart Institute at St. Luke's Episcopal Hospital
Baylor College of Medicine
Sibley Heart Center, Children’s Healthcare of Atlanta
Site PI
UT Health Houston
Co-Site PI
Oklahoma Children's Hospital
University of California San Francisco Benioff Children’s Hospital
Site PI
Children’s Healthcare of Atlanta Cardiology / Emory University
University of California, Los Angeles
Site PI
Johns Hopkins Universiy
Dell Children’s Medical Center
Yale School Of Medicine
Site PI
Abigail Wexner Research Institute at Nationwide Children’s Hospital
Loeys-Dietz Syndrome Foundation Canada
Website Committee
University of Michigan
Site PI
Mayo Clinic
Steering Committee
Ann & Robert H. Lurie Children’s Hospital of Chicago
Site PI
The Marfan Foundation
Patient Advocate
Ann & Robert H. Lurie Children’s Hospital of Chicago
Nicklaus Children's Hospital, Miami
Mayo Clinic
Cleveland Clinic
Site PI
Baylor College of Medicine
Oregon Health and Science University
Site PI, Steering Committee, Imaging Committee
Ann & Robert H. Lurie Children’s Hospital of Chicago
Cleveland Clinic
Dell Children’s Medical Center
Site PI
Abigail Wexner Research Institute at Nationwide Children’s Hospital
Site PI, Steering Committee
The Ehlers-Danlos Society
Patient Advocate
Loeys-Dietz Syndrome Foundation Canada
Website Committee
Loeys-Dietz Syndrome Foundation Canada
Website Committee
Yale School Of Medicine
Co-Site PI
NewYork-Presbyterian Hospital
Site PI
Women and Infants Hospital of Rhode Island
Site PI
NewYork-Presbyterian Morgan Stanley Children’s Hospital
Co-Site PI, Imaging Committee
Oregon Health and Science University
Children's Hospital of Orange County
Site PI, Imaging Committee
Abigail Wexner Research Institute at Nationwide Children’s Hospital
Steering Committee, Imaging Committee
Children’s Hospital at Montefiore
Site PI
NewYork-Presbyterian Hospital
PennState Health
Site PI
Boston Children’s Hospital
Site PI, Steering Committee
Stanford University School of Medicine
Steering Committee, Imaging Committee
Johns Hopkins University
Site PI
University of Washington (UW Medicine)
Site PI
UT Health Science Center at Houston
Site PI
Children’s Hospital of Philadelphia
Site PI
Mayo Clinic
Site PI
Texas Children's Hospital
Steering Committee, Genetics Committee
University of Saskatchewan Canada
Site PI, Steering Committee
McGill University Health Centre
Steering Committee
Indiana University
The Nemours Foundation
University of Calgary
Vanderbilt University
The Data coordinating center will be based at Texas Children’s Hospital. This will serve as the central data repository for both clinical data and imaging data.
This committee helps with variant interpretation and is currently being supported by MAC.